Kris M.
RN BSN CEN  Clinical Documentation Specialist
Quinalt, WA

      
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I loved your book!  I thought it was very comprehensive and detailed. The resources all in one place are amazing!

Thank you. My husband and I both have CD and your book is by far the best one we have found in print on CD. We love the format with the concise, current overview in the beginning and the detailed charts that make up most of the book. We refer to it on a regular basis as we research questions for ourselves, friends, family and others.

We shared your book with the head of the pathology dept. at our local hospital, our CD support group members at our last meeting (and encouraged them all to purchase their own copies) and even with our dentist.

I wish there were a way to get your book to all of our local doctors since none of them are informed about CD and few people are diagnosed in our area. My doctor had never dx'd a case of CD before mine (I was on my deathbed 6 years ago), and our pediatrician has never dx'd a case!

I have proposed that our support group purchase books for all of our local gastroenterologists, providing you are not planning to publish an updated version in the near future.

If there is any way you recommend that our support group, or we personally, can promote your book please let us know.

Thank you again!

Suzanne Ludlam
Fairfax, VT

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Hi Cleo -

I read through Recognizing Celiac to confirm what was
happening with my daughter's symptoms. When she was
having a variety of strange symptoms, joint pain, skin
problems, diarrhea, weight loss and yellowing teeth no
one was putting it together and guessing celiac.
Now we are having relatives with some similar symptoms
so I am showing them your book and encouraging them to
be tested for Celiac.  I passed the book on to our
local pediatricians because I had been told by them
"She does not look like a Celiac".  She was diagnosed
2 years ago and is feeling great because she follows a
gluten-free diet all the time.  Thanks for educating
folks and letting them read about all the possible
complications/ symptoms of untreated Celiac.

Mary M.
Monterey, MA

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I especially enjoy the table which lists the dietary sources of specific nutrients (both animal and plant specific).  I use it to help patients see where deficiencies may exist if the diet is not well-rounded.  Vegetarians find it extremely beneficial to their individual understanding...  I keep several pages tagged always for reference.
 
Linda H., RD, LN
Bozeman, MT

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There are finally a lot of good Celiac Disease books out there.  Cleo Libonati's Recognizing Celiac Disease is the best, by far the most thorough and researched--but unfortunately the hardest to obtain.

Dale Adams
Dixon, CA

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The book helped me personally in evaluating whether I have celiac disease and broadening my understanding of the wide variations of possible symptoms.  It turns out I don't have celiac, which was determined by genetic testing, but the book was a good first step in getting me moving forward towards that end result.  I am also a dietitian, so it is helpful professionally.

Pat S.
Fort Washington, PA

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I have greatly benefited from your book! It is such a comprehensive invaluable resource. I am myself a celiac diagnosed in 2003, and I am also a Physician Assistant practicing in Gastroenterology. Your book has really improved my awareness of specific nutritional deficiencies that potentially come with the diagnosis. I feel I am doing a much better job of assessing my patients. Since I also have Crohns patients who can have the same issues with malabsorption if they have small bowel disease, it has been helpful to understand them as well.  I am very grateful to you for your efforts. I am positive that it was a very challenging task to assimilate all of that information!

Best regards,

Michelle E., PA-C
GI Specialists
20375 W. 151st Street Suite 354
Olathe, KS 66061

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I am a physician and use the book whenever I suspect or diagnose celiac disease, to remind me of the basics but also of the many potential subtleties and traps in the diagnosis and treatment of this disease.  It is very clear, comprehensive and helpful; until now, I had never seen so much information on the disease in one book, and that makes my life easier. Thank you !

Pierre R., M.D.
Montreal, Quebec 
Canada

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I thought the book was welll written and very complete.  As both a nurse and a person with gluten intolerance it gave me all the information I needed to discuss options with my doctors.

Thank you,

Bettsy B.
Waverly, IA

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Thank you so much for publishing this wonderful book.  For me, because I have been involved with the disease for so long (37 years), it has been a godsend in relaying accurate and up to date information to the members of The Gluten Intolerance Group.  As one of the founders of GIG I learned under the tutaledge of Dr. Elaine Hartsook and have had the opportunity to know and work with many of the leaders in Celiac reasearch and medicine.  I do not have a medical background but have absorbed much over the years while attending conferences and symposiums all over the world.  That said, I found your book so very informative and specific in the areas that we celiacs and medical professionals need to be.  I have almost worn my copy out by lending it to physicians and dietitians and members of my Support Branch of GIG.  I just hope these people, professionals in particular, are ordering this book for their reference libraries.
 
I have spent hours and hours reading, and trying to remember, the Nutritional Deficiencies of Celiac and finding out, by the Signs and Symptoms Section, that I started manifesting symptoms when I was as young as two or three years old.  Unfortunately, I was not diagnosed until I was 24 years old and at death's door. 
 
I only wish this book could be a part of every Gastroenterologist's, Dermatologist's and Dietitian's Library. 
 
Once again, thank you for taking the time and effort to publish such a well organized and statistical book.  I have and will continue to recommend it to all of my associates.
 
Susan E.
Branch Manager
Kitsap/Olympic Peninsula
Gluten Intolerance Group
Sequim, WA

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Hello Cleo, First Thank you for organizing all the info that you have in this book, that has been the most valuable area for me as a Nutritionist. I was finally able to show my patients how their Gluten Sensitvity is causing some if not all of their other issues. We have a staff copy here in our clinic, and I have my own copy for my client use.  Thanks Again for this great and very informative book. 

Cheryl B., CCN, CCH
Boulder, CO

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I use your book as a reference when trying to figure out nutritional deficiencies caused by longstanding malabsorbtion. I have learned a lot from it and solved several problems. 
 
I look up information and then try supplements to see it they resolve the symptoms. It’s a useful book and it has helped me become healthier. My medical doctors are no help on nutrition; they don’t realize the implications of celiac disease on nutritional status.

Pat H.
Lafayette, CO

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We are using the book for education purposes for our Dietetic and Culinary
and Food Service students to make them aware from the industry side how
they need to be aware and to teach them how important it is to incorporate
gluten free items on their menus.

Jo T.
South East Community College
Lincoln, NE

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Hello Cleo - I am hoping to meet you some day!!
 
I just did a book review of your book for our chapter last Sunday.  I tell everyone at our chapter - buy this book for your doctor for Christmas!!
 
I just picked a few signs, symptoms etc. to talk about it.  One was migraine. One new member said "I had a migraine for 2 months and no one said anything about celiac disease".  (She was later diagnosed at gallbladder surgery....)
 
I have found the book an excellent resource for use in answering new members questions or questions from people who think they may have celiac disease.

Personally, I was most fascinated by the information on the malabsorption of Omega 3 fatty acids.  I had not seen this information before.
 
For me personally, the most relevant information was about the impact that vitamin D malabsorption has.  It took my doctor awhile to figure out that I was very low in vitamin D.  Had I had this book sooner, I might have figured that out earlier and lessened the impact on my bone density.
 
Judy B.
Past President
Greater Kansas City Chapter #4
Celiac Sprue Association
'Celiacs Helping Celiacs'
www.csakansascity.org

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To Cleo,

I was so grateful to have met you and am enjoying all the information in your book. The quick reference format is helpful for us in the office to help justify testing for those patients that we suspect of having Celiac. On the test requisition form for Prometheus or Kimball we have to come up with appropriate diagnosis codes. We are working hard to educate our local physicians.

Gretchen M. OTR/L
Boca Raton, FL

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Hi Cleo,

I particularly liked your book because it was so concise and well researched.  I have a background in technical writing, so I know how long and hard you have worked on your tome.  I have referred to it when others in our group have a question.  I know I have had to check word meanings occasionally - for me, that's the mark of a great book - I can understand and visualize the sequences.  Your charts were extremely clear and specific.
 
I do think the part that tives me the most pleasure is carrying it into the doctor's office and plopping it on his desk.    I haven't had one who was even curious about it - including my gastro.  I did show parts of it to the endocrinologist and he appeared to look at the graphics - but only briefly.  I do find that I am able to converse at a higher level and describe my problems in detail with research to back up any looks of disbelief. 
 
I personally enjoy the challenge of a well written manuscript  in any form, but you have a real winner in this book.  I have read most of the other authoritative CD books, but the authors didn't use the structured approach  found in your book.
 
I admit I'm very interested in trying to put together the Celiac puzzle so our offspring can enjoy a long, happy & healthy life.  I was diagnosed 30 years ago when my fourth (and final) daughter, Gretchen, was born.  My whole world collapsed until a doctor at Henry Ford Hospital recognized the "non-tropical sprue" and sent me to a gastro from Hong Kong.  This man saved my life.  I had extremely low Vitamin D - I was slowly losing the perabulatory movements.  He recognized rickets and started injections.  Sure, I have bad winters now, but at least I know it will end.  

If there is anything I can do to help, please let me know.  I finished your book in 1 night!!!!!  I had written to some bloggers and websites encouraging people to buy your book.  I'll get busy and steal some time to do some more.
 
Thank you for caring,

Rose Mary
Benton, KY

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Cleo:
 
The book provided more scientific insight into the unknown territories of folks diagnosed with Celiac.
 

Clift B.
Austin, TX
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I have used the book to check symptoms to see if they are related to my CD or just "old age".  It has also been most helpful when others call asking about similar problems.  In short. . I find the arrangement by symptom and systems most helpful!  Thank you for an unusually helpful publication.

Mimi F.
Kearney, NE

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Thank you for your email, Cleo! 
 
I was diagnosed with Celiac Disease in October 2004.  Since the time of diagnosis I have been reading everything I can find regarding Celiac Disease and Autoimmune Diseases.  Your book has been the most informative and complete book that I have found.  I appreciate the format and the extensive information included in it. 
 
I have an extensive library and have loaned your book to others in similar heatth situations.  Your book has been utilized by many, and for all  that have read it comes a feeling of hope.
 
Thank you for this book!
 
With warm regards,
 
Paige H., RN  (and Celiac)
Ada, MI

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Doctors need “Recognizing Celiac Disease”  the most.  It is great for patients, too.

The book will help doctors to:

1. Recognize signs of Celiac disease leading to potential diagnosis
2. Be on the lookout for other conditions (deficiencies, etc ) especially if the history suggests the person has had the Celiac disease for an extended period of time prior to diagnosis.

My doctor thought it silly that the ringing in my ear could be related to my Celiac disease.  After some research, I found that ear ringing is related to B12 deficiency which can be related to Celiac disease.

I believe it was your book that prompted me to have the doctor test for levels of other nutrients in my blood at the same time he tests for iron.

This is a book for all family doctor’s, GPs and internists.
               
This book is also good for Celiacs, provided they do not have hypochondriac tendencies.

Kevin G.
South Bend, IN

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I am slowly learnng more about how it has affected me.  Once I converted over , any wheat has more impact.
 
 
John R.
Fullerton, CA

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